Information about health care information resources alternative medicine
Women's Health Information Resources The following categorized and annotated listing of women's health resources on the WWW includes academic centers, government sites, electronic journals, and other research resources. Sites have been selected either for their uniqueness as an information resource or because they provide links to many more resources. Promotional and commercial sites have been excluded unless they provide significant neutral information resources.
There are general conventional medicine sites as well as complementary and alternative medicine (CAM) sites. The information resources for women's health cannot easily be categorized as conventional or CAM; they tend to be a mixture of both and many web sites place the emphasis on women and wellness. All can be important resources when researching any particular women's health problem. ---------------------------------------------------------------------
Contents 1. General Academic Resources - Mainly Conventional Medicine 2. On-Line Journals 3. Professional Associations 4. Government Resources - Mainly Conventional Medicine 5. Research and Clinical Trials Listings - Conventional medicine and CAM 6. Complementary and Alternative Medicine Resources 7. Women's Health Topics
1. General Academic Resources - Mainly Conventional Medicine
An effective way to gain an overview of any health resources on the World Wide Web is to use one of the Internet meta-directories that give categorized listings of relevant sites. The following selected sites provide hyperlinks to hundreds more sites relating to all aspects of women's health. This includes academic sites, on-line journals and newsletters, professional organizations, information services, self-help and discussion groups. There is considerable overlap between the lists. Ask NOAH - Women's Health NOAH is a consortium of four New York institutions and provides rapidly updated, unbiased information on a range of health topice. Supports English and Spanish.
Global Health - Women's Health Collection of relevant sites and resources compiled by the Center for Research on Reproduction and Women's Health, University of Pittsburgh. Hardin - Obstetrics, Gynecology and Women's Health From the Hardin Library for the Health Sciences, University of Iowa, this site lists the best listings of Internet resources, categorized by medical topic, size of resource, and rating.
HealthWeb Women's Health Another useful meta-directory from the University of Wisconsin - Madison, Health Sciences Library. MedWeb: Women's Health Click on Consumer Health - Women's Health for a comprehensive categorized listing of women's health resources. This section is searchable.
National Center for Policy Research For Women and Families The National Center for Policy Research (CPR) for Women & Families promotes the health and well-being of women and their families, by using objective, research-based information to encourage new, more effective programs and policies National Library of Medicine-MedlinePlus News and categorized information resources for consumers from the NIH, other government and non-government sources. Searchable database by key word or topic list.
Yahoo! One of the most popular sites for health information, Yahoo! provides indexed hierarchical listings, search capacity, and latest breaking news items. Top of Page
--------------------------------------------------------------------- 2. On-Line Journals
Major medical journals have occasional articles relevant to aging research. The following journals are specific to aging research, and are available on-line in whole or in part . Medscape Medscape is now part of WebMD Corporation and there are advertisements on the site. A one-time, free registration to Medscape is required for access to the Medscape database of full-text articles and full text electronic journals. The resource is primarily an information and education resource for physicians. The content is organized by specialty so you can make Women's Health your home page and access the Women's Health e-Journal.
--------------------------------------------------------------------- The following journals are relevant to women's health problems and have occasional articles on complementary and alternative medicine:
Gynaecological endoscopy The full table of contents is available on request via email, and subscription rates are listed for printed, full text copies. Journal of Clinical Oncology Full table of contents and abstracts available. Full text access requires paid subscription.
Journal of Mammary Gland Biology and Neoplasia Subscription required for on line access. Includes related links. Journal of Psychosomatic Obstetrics and Gynecology This journal brings together information from the many disciplines involved in psychosomatic medicine. Tables of contents listed. Subscription and ordering information provided.
Journal of Women's Health Peer-reviewed journal publishes clinical and research papers on medical health issues that affect women throughout their lifespan. Top of Page
--------------------------------------------------------------------- 3. Professional Associations
It is advisable to inquire into the funding of voluntary, nonprofit organizations. Not all provide this information on the web site. Some receive grant aid from pharmaceutical companies that may prejudice the type of activities, information, and recommendations made by the organization. American College of Obstetricians and Gynecologists A private, voluntary, nonprofit organization providing professional education, advocacy and patient education.
American Medical Women's Association (AMWA) Women physicians and medical students dedicated to the care of women patients. Searchable and provides relevant links. American Menopause Foundation Consumer based organization located in New York
National Academy on Women's Health Medical Education (NAWHME) Concerned to bring women's health topics more prominently into the medical curriculum. Now part of National Health Information Center. National Osteoporosis Foundation Not for Profit organization based in Washington, DC. Information includes clinical guidelines and current legislation
North American Menopause Society (NAMS) Search the site for clear, neutral information based on existing research information abstracts back to 1994. National Women's Health Network The National Women's Health Network is a non-profit 501(c)(3) organization dedicated to women's health issues. The network does not accept pharmaceutical company money.
Society for Women's Health Research (SWHR) Working for enhanced funding for research into "women's diseases" and representation of women in Clinical Trials. Links to other related sites. You can subscribe to a regular e-newsletter - click on About Us. Top of Page
--------------------------------------------------------------------- 4. Government Resources - Mainly Conventional Medicine
There are several government Web sites which have useful information on women's health issues. The US government has readily adopted Internet technology for giving direct public access to collected information, research findings and policy documents. CDC Office of Women's Health Resources on women's health from the Centers for Disease Control.
FDA Office of Women's Health (OWH) OWH funds research projects and provides education and information resources. The office investigates and advises on women's issues relevant to the development of food, cosmetics, and drugs. Healthfinder Categorized and reviewed listings of organization's web sites primarily for consumers, includes women's health topics.
National Center for Health Statistics (NCHS) From the Nation's principal health statistics agency, this is a listing of statistics relevant to women's health. National Guideline Clearinghouse NGC is designed to disseminate evidence-based clinical practice guidelines. Search on "women's health" for relevant guidelines.
National Institutes of Health (NIH) Information on specific disease areas affecting women's health can be found under the appropriate Institutes or Offices. Try using the NIH search engine for crosscutting issues. NIH Consensus Development Program for the latest information on Consensus Development Conferences and Statements. Scan the list of Consensus Development Statements for Women's Health topics
National Women's Health Information Center This Web site for the US Public Health office of Women's Health offers resources and information for professional and consumers. Covers government and private sector approved resources. Office of Women's Health, DHHS Supports multidisciplinary research, and public and health care professional education targeted toward the special needs of women, including underserved and minority women. Seventeen government Centers of Excellence in Women's Health Research can be accessed from this site.
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5. Research and Clinical Trials Listings - Conventional medicine and CAM CenterWatch Clinical Trials Listing Service A fully searchable international listing of clinical research trials, medical centers and new drug therapies. Live links indicate that the center is actively recruiting patients.
The NIH CRISP Database https://www-commons.cit.nih.gov/crisp/ Database of HHS grant awards and NIH intramural research. The CRISP system has a new Web-based interface. Try searching on any specific area of women's health. Women's Health Initiative (WHI) Description of the fifteen year research program focusing on the major causes of death, disability and frailty in post menopausal women.
Women's Health Australia Longitudinal Study started in 1995 to follow a cohort of women through the next 20 years. Located at the University of Newcastle, New South Wales. Top of Page
--------------------------------------------------------------------- 6. Complementary and Alternative Medicine (CAM) Resources
There are very few Web sites specifically on the topic of women's health and complementary and alternative medicine (CAM). The following are some key sites with resources on complementary and alternative medicine, including the general resources on CAM for the Rosenthal Center for Complementary and Alternative Medicine. For general information resources on Complementary and Alternative Medicine, see:
Alternative Medicine Foundation The foundation has a range of resource guides on different alternative and complementary medicine modalities and specific health related areas. All are relevant to women's health. HealthWorld Online Healthy women center . provides information on alternative medicine, wellness and self care.
InteliHealth This resource from the Harvard Medical Schools and Aetna provides a perspective on CAM from a conventional health practitioner perspective. National Center for Complementary and Alternative Medicine This NIH center was specifically mandated by Congress to research complementary and alternative medicine.
Office of Cancer Complementary and Alternative Medicine The office was established to coordinate and enhance the activities of the National Cancer Institute (NCI) in the arena of complementary and alternative medicine (CAM). Office of Dietary Supplements This web site provides information about the Office of Dietary Supplements, including its programs and activities, and scientific resources.
Rosenthal Center for Complementary and Alternative Medicine General Information Resources For CAM Internet resources, Directory of Databases, medical courses and training, legal and regulatory information, calendars and events. SusanLoveMD The Susan Love MD Breast Cancer Foundation primarily provides advice and information on breast cancer. The site includes significant resources on women and wellness and complementary approaches to self care.
White House Commission on Complementary and Alternative Medicine Policy The commission was initiated in 2000 to address CAM practices and products, delivery and public access to services, dissemination of reliable information, appropriate licensing, education and training of practitioners. The Final Report is available on the site. Stanford - Women's Center for Mind-Body Health Dr. Stein's collection of research articles on mind-body health.
Women to Women Informational web site for natural health clinic features articles on symptoms of menopause, hormonal imbalance, breast cancer, hypothyroidism, HRT, and related issues. Top of Page
--------------------------------------------------------------------- 7. Women's Health Topics
The following sites include a mixture of conventional and complementary medicine; professional information and self help groups; research resources and patient information. The many commercial and promotional sites have not been included unless they provide significant independent information resources. General Conditions - Wellness - Exercise - Nutrition Autoimmune diseases Cancer - breast cancer - gynecological cancer Childbirth and Pregnancy Diabetes Hair Loss Heart Disease Chronic Conditions of Aging - incontinence - osteoporosis Mental and Social Wellbeing Reproductive Health - endometriosis - fibroids - hysterectomy - infertility - menopause and hormone replacement therapy - sexually transmitted diseases
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EXERCISE: About.com - Exercise Categorized list of exercise topics, from tai chi to pregnancy and exercise.
Exercise/Physical Fitness http://www.nlm.nih.gov/medlineplus/exercisephysicalfitness.html Information resources on health and fitness, primarily relating to women, from Medline Plus. Health and Fitness-Train the Smart Way Learn about the benefits of exercise and how to determine the right exercise program for you.
Lifetime Television - Diet and Fitness Center Commercial site with some useful information. Back to Topics
NUTRITION: American Society for Nutritional Sciences View abstracts and full text of the Journal of Nutrition online, search archives.
Eating Disorders Online Comprehensive site that keeps readers up-to-date on the latest ED information in the news and on-line. Food and Healing A natural, no-drug, no-supplement approach to preventing bone loss from a nutritionist.
Nutrition Awareness Recent news on nutrition and health and searchable archives from down under in New Zealand. About.com - Nutrition Categorized links to relevant sites and articles, list of related issues
Preventing Eating Disorders One of the most comprehensive and accurate resources available for eating disorders. Prevention This site includes useful information, particularly within its health & healing and cooking & nutrition links.
Back to Topics WELLNESS
Boston Women's Health Book Collective Publishers of Our Bodies, Ourselves, this non profit group provides information about health, sexuality and reproduction. The Canadian Women's Health Network This site provides a forum for information sharing, education and advocacy for women's health. Categorized links to other sites are available, and will soon be available for databases as well. Searchable.
DrDonnica.com Clear, categorized information. Click on Women's Health Resources in the sidebar for a list of topics, or use the search feature. Feminist.com Extensive list of categorized links to organizations, institutes, databases, and personal sites, search ability.
Food and Healing A natural, no-drug, no-supplement approach to preventing bone loss from a nutritionist. Healthy Women A site for health professionals and consumers from the National Women's Health Resource Center. All content is reviewed by a medical advisory board. Searchable.
Partnership for Gender Specific Information Gender specific medicine, his and hers presented on one site at Columbia University College of Physicians and Surgeons. Has a health shop. Homeopathic Perspective on Women's Conditions A brief guide to homeopathic medical treatments specific to women's health conditions, and an additional resource list.
National Women's Health Resource Center NWHRC is the national clearinghouse for women’s health issues, providing membership, ordering and subscription information for their newsletter, staff-performed searches, and access to their resource library and database. This site also has a comprehensive list of related links. New York Times Women's Health Categorized list of resources and with free registration, access to the NY Times’ Women’s Health web site.
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Autoimmune Diseases American Autoimmune Related Diseases Association, Inc. (AARDA) The AARDA is the only national organization dedicated to the problem of autoimmunity; this site views information, statistics, research reports, and articles from their nationally distributed quarterly newsletter.
Arthritis and Rheumatic Disease Clearinghouse (NAMSIC) This site offers basic public information on arthritis and rheumatic diseases, its incidence among women, causes, symptoms, and treatments. Connexions: The Autoimmune Support Page This wide-ranging site includes discussions on what autoimmune disease is, the various types of diseases, and links to more information for the patient seeking self-education and support.
Cliniweb International Oregon Health Sciences University has compiled a research resource using PubMed for direct links to research articles on various autoimmune diseases. Results have been categorized, offering a choice of All, Review, Therapy, Diagnosis. National Arthritis and Musculoskeletal and Skin Diseases Information (NIAMS) The NIAMS Intramural Clinical Studies program includes many relevant research trials including rheumatoid arthritis, osteoarthritis and lupus, many of which are currently recruiting.
International Pemphigus Foundation Site for research and information on pemphigus - a group of rare autimmune blistering diseases of the skin and/or mucous membranes. National Women's Health Information Center: Autoimmune Disease in Women NWHIC Frequently Asked Questions about autoimmune disease.
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Cancer GENERAL RESOURCES FOR CANCER:
Association of Cancer Online Resources Offers access to 79 electronic mailing lists designed as public online support groups. Cancer Education Initiative The Carol Ann Schwartz Cancer Education Initiative from the Rosenthal Center Web site.
CancerLit Extensive bibliographic database from the National Cancer Institute provides this bibliographic database containing more than 1.5 million citations and abstracts from over 4,000 different sources including biomedical journals, proceedings, books, reports, and doctoral theses. Center for Mind-Body Medicine The center runs an annual Comprehensive Cancer Care Conference on the integration of complementary and alternative therapies into conventional cancer care.
M D Anderson Cancer Center - Complementary/Integrative Medicine Resources This website contains short summaries of research information for the general public and professionals about complementary medicine and alternative medicine therapies associated with cancer treatment and side-effects. National Foundation for Alternative Medicine General resources on alternative and complementary medicine with specific information on alternative and complementary cancer therapies.
Oncolink This site from the University of Pennsylvania provides helpful background information on conventional care for cancer, support and self-help groups. Stanford University's Department of Radiation Oncology Back to Topics
BREAST CANCER: American Cancer Society The National Comprehensive Cancer Network (NCCN) and the American Cancer Society (ACS) have teamed up to provide patients and the public the most current information about treatment options for breast cancer.
Best Web Sites on Breast Cancer Designed to help patients research treatment options. Provides a list of evaluated related links. Better Breast Cancer Health Profiles Foundation for Better Health site offers basic patient information on breast cancer, causes, and mammograms.
Breast Cancer Answers Breast Cancer Answers is a resource of the Public Health Institute to improve access to and awareness of breast cancer clinical trial information, support patients receiving treatment, and improve the quality of life of patients with breast cancer. . Breast Cancer Citations This resource from the R & H Rosenthal Center provides an extensive categorized list of breast cancer references relating to complementary and alternative medicine. All citations are from peer reviewed journals.
BreastCancer.net Recent news on breast cancer, links to relevant articles and other resources. Cancer Online Cancer Online is a full-text, electronic implementation of Cancer, an Interdisciplinary International Journal of the American Cancer Society, and its new Cancer Cytopathology section.
Community Breast Health Project Grass roots, patient driven community resource from the Stanford University Medical Center. HealthWeb - Cancer Developed by the Ruth Lilly Medical Library at the Indiana University School of Medicine, this site provides an extensive collection of alternative therapies for breast cancer.
Mammary gland database Product of a consortium specializing in research on the mammary gland and breast cancer, particularly experiments using transgenic and knock-out mice. National Human Genome Research Institute: Breast Cancer Information Questions About the BRCA1 and BRCA2 Gene and Breast Cancer
Back to Topics GYNECOLOGICAL CANCER:
National Cervical Cancer Coalition (NCCC) Comprehensive information resource for cervical cancer for health professionals and patients, with extensive links to further resources. National Ovarian Cancer Coalition Links to a variety of resources.
Oncolink: Gynecologic oncology Oncolink resource from the University of Pennsylvania covering cervical, endometrial and uterine cancer, fallopian tube cancer, gestational trophoblastic disease, ovarian cancer, vaginal and vulval cancer. Women's Cancer Network Information resource developed by the Informatics Committee of the Society of Gynecologic Oncologists.
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Childbirth and Pregnancy The Homebirth Choice Full text article with hyperlinks from Midwifery Today, explaining home births, certification and training of midwives; provides resource lists.
Herbs for Pregnancy Herbs to use and herbs to avoid during pregnancy. This page is part of the Fens End Professional Midwife Archives site. The entire resource is worth exploring Midwifery Archives. Online Birth Center Provides links to items within their own site birthcenter database as well as external links.
La Leche League Breastfeeding support and information, and links to local, national and international branches of the organization are available from this Web site. Midwifery Today Full-text articles from the publication Obstetrics and Acupressure. A collection of descriptive case studies from the Oriental Medicine Journal, Southport, Chicago, are presented here on the practice of acupressure in childbirth.
Online Birth Center Wide-ranging site with links to related sites, including alternative medicine sites. The Waterbirth Website A clear presentation of waterbirthing. Beautiful graphics but slow to download.
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Diabetes: Diabetes Care, American Diabetes Association This site has categorized information for both the patient and the health care professional. Diabetes Care is the association's online journal.
Diabetes Well Developed by the Pacific Medical Research Foundation, this is a comprehensive resource for people interested in diabetes. Diabetes Resource Center Medical news, links to useful information, books, newsgroups and message boards, links to related sites and medical search engines and directories.
Diabetics Unite Extensive list of personal and professional links. Jeanine's Sugar-Free Recipes Sugar-free recipes for beverages, breakfast foods, and desserts.
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Hair Loss HerAlopecia.com Web site initiated and maintained by Laura Sallette who provides comprehensive information and research resources on women's hair and opportunities for exchange of experiences and views.
--------------------------------------------------------------------- Heart Disease
About.com - Heart Disease Weekly articles and hundreds of hyperlinks to related sites; bulletin board and chat room. Worth checking out regularly. American Heart Association Facts on risks women face for heart disease and stroke and how lifestyle changes can lower those risks from the American Heart Association Women's Page.
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Chronic Conditions of Aging URINARY INCONTINENCE:
Epidemiology and Management of Female Urinary Incontinence This article provides clinical and epidemiological data and consumer information. InContiNet Links to a wide range of information, including Professional Issues; a discussion group, inContilist; Q & A forum; and critical reviews of the incontinence literature.
Back to Topics OSTEOPOROSIS:
Arizona Osteoporosis Coalition Arizona based but educational information on maintaining healthy bones is universally relevant. Calcium Information Resource Plain English information resource targeted to consumers and professionals. Although part of SmithKline Beecham there is a conscious attempt to keep the site non-commercial.
Midlife Passages Categorized site on HRT information. Osteoporosis and Related Bone Diseases Information resource for patients and professionals from the National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse.
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Mental and Social Wellbeing GBMC Women's Resource Provides psychosocial support, education and information about health and related concerns.
Hygeia Foundation, Inc Use of new technologies to help assuage the hurt, grief and sorrow accompanying the loss of a pregnancy or newborn child. Contains Caring/Hygeia, an Online Journal for Pregnancy and Neonatal Loss. Mental Health Net Alphabetical index of mental health disorders with links to further resources, given a rating by clinicians and readers.
Women's Center for Mind-Body Health Information on how what we call "mind" and the "body" affect each other in our daily lives, with explanations of the main underlying concepts. Back to Topics
--------------------------------------------------------------------- Reproductive Health
GENERAL REPRODUCTIVE HEALTH: Museum of Menstruation and Women's Health MUM for short - devoted to menstruation and selected topics of women's health.
Obstetrics and Gynecology Network Designed with separate but overlapping sections for OBGYN professionals, the medical industry, and women. Back to Topics
ENDOMETRIOSIS: Endometriosis This page is provided from the Altanta Reproductive Health Centre. Click on Endometriosis.
Endometriosis Association Non-profit, self-help organization. Endometriosis Care Center Advice from a care center founded to diagnose, treat and educate women about endometriosis.
Endometriosis Research Center ERC is a registered nonprofit and serves as the research contact organization for clinical trials on endometriosis. Based in Florida but with an international mission. Back to Topics
FIBROIDS AND HYSTERECTOMY: Center for Uterine Fibroids This center at Brigham and Women's Hospital offers clinical and research information about fibroids. It is not meant to replace the doctor-patient relationship.
Fibroid Center of New York Offers comprehensive information for both the patient and physician, access to a newsletter and links to other gynecological resources. HysterSisters Online A support group for women either considering or who have already had hysterectomies, providing alternatives, education on hysterectomies, and medical information.
Mayo Clinic.com This section of the Mayo Clinic web site provides research, information and education about fibroids. National Uterine Fibroids Foundation NUFF is a nonprofit public charity dedicated to educational and scientific aspects of the care and treatment of women who have uterine fibroids or related conditions of the reproductive system.
Back to Topics INFERTILITY:
American Society for Reproductive Medicine ASRM was formerly the American Infertility Society. This new website has information on current clinical trials and a survey of current state laws relating to reproductive issues, including Assisted Reproductive Techniques. Georgetown University Medical Center - Institute for Reproductive Health The institute provides technical resources for fertility awareness for the use of policy planners, governmental agencies, non-governmental organizations (NGOs), service providers, researchers, educators, and community-based program managers. There is an extensive bibliography of relevant articles under Publications.
Infertility Resources Resources at this site include organizations, conferences, experts, research results, and treatment statistics. Click on Infertility Resources for Professionals for a listing. Journals and Newsletters, links to several publications in the field. International Council on Infertility Information Dissemination The site provides summaries of journals relating to infertility, breaking news in infertility research, and articles relating to ethical issues. A searchable database of abstracts can be found on the home page.
IVF.com: infertility, IVF, Endometriosis This site looks particularly at the link between endometriosis and infertility. Click on Determining Ovarian Reserve for information on current procedures and success rates. Click on in vitro fertilization in the side bar for more information on sample legal agreements for donors and surrogates. Women's Health Interactive Women's Health Interactive provides a resource listing of organizations offering Surrogacy and Egg Donation services.
Back to Topics The following sites are particularly oriented to patient resources
Advanced Fertility Center of Chicago This site providess a tour of the lab, images of eggs, sperm and embryos, a sample calendar of procedures, and a list of available donors.
Infertility Message Board This is part of HealthBoard.com, a message board site which is key word searchable. Back to Topics
MENOPAUSE AND HORMONE REPLACEMENT THERAPY: Menopause Online For information on symptoms and treatments, both hormonal and alternative. Bulletin board, chat room, and personalized test.
About.com - Menopause The Mining Company annotated guide to menopause WWW Links. North American Menopause Society (NAMS) Search the site for clear, neutral information based on existing research information on this natural biologic event.
Planned Parenthood - menopause Provides information about menopause, hot flashes, osteoporosis, sexual health and midlife changes. Power Surge Power Surge is known for its guest conferences with experts in the area of women's health in midlife.
Back to Topics SEXUALLY TRANSMITTED DISEASES:
Nothing But the Facts Straight information about specific sexually transmitted diseases (STDs) and advice on how to minimize your risk. Sexually Transmitted Diseases Comprehensive fact sheet from the National Institute of Allergy and Infectious Diseases.
Sexually Transmitted Diseases Information Resources from Medline Plus Back to Topics
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--------------------------------------------------------------------- Page updated June, 2007
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