Information about organizations that support health information system
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Support, Education, Research and Advocacy Organizations The following is a listing of agencies and organizations that give information about mental illness, offer support groups, do advocacy on behalf of people with mental illnesses and their families, and/or support or do research into these illnesses. Some have local offices and contact people. Contact your United Way or the national organization for further information.
Click on any organization below for a short description and contact information. Alzheimer's Association, Inc.
Alzheimer's Disease Education and Referral Center American Foundation for Suicide Prevention
Anorexia Nervosa and Related Eating Disorders, Inc. (ANRED) Web site Anxiety Disorders Association of America
Autism Society of America Center for Mental Health Services (CMHS)
Center for Psychiatric Rehabilitation Children and Adults with Attention Deficit Disorder (CHADD)
Compassionate Friends, Inc. COMPEER
D/ART, (Depression Awareness, Recognition and Treatment Program) Dayton Suicide Prevention Center
Department of Justice Depression After Delivery
Depression and Related Affective Disorders Association Emotions Anonymous
The Federation of Families for Children's Mental Health Foundation for Depression and Manic Depression
Grow, Inc. Indianapolis Center for Congregations
International Conference of War Veteran Ministers Juvenile Justice Clearing House
Learning Disabilities Association of America Lithium Information Center
Matrix Research Institute/Penn Research and Training Center of Mental Illness and Work NARSAD - the Mental Health Research Association
National Alliance for the Mentally Ill (NAMI) National Association of Anorexia Nervosa and Associated Disorders (ANAD)
National Clearing House for Alcohol and Drug Information National Coalition for the Homeless
National Depressive and Manic Depressive Association (NDMDA) National Eating Disorders Association
National Information Center for Children and Youth with Disabilities National Institute for Mental Health (NIMH)
National Mental Health Association National Mental Health Consumer's Self-Help Clearinghouse
National Mental Health Services Knowledge Exchange Network National Stigma Clearinghouse
National Women's Resource Center for the Prevention of Alcohol, Tobacco, and Other Drug Abuse and Mental Illness Obsessive Compulsive Anonymous (OCA)
Obsessive Compulsive Disorder Foundation Obsessive Compulsive Information Center
Panic Disorder Education Program Recovery, Inc.
STEMSS Institute Tardive Dyskinesia/Tardive Dystonia National Assn.
Tourette Syndrome Association WELLCOA (Wellness Councils of America)
Alzheimer's Association, Inc., 919 North Michigan Avenue, Suite 1000, Chicago, IL 60611; (800) 621-0379 or (312) 335-8700; www.alz.org. Provides, support groups for families, educational and patient care materials, information about local resources and services. Alzheimer's Disease Education and Referral Center, P.O. Box 8250, Silver Spring, MD 20907-8250; (800) 438-4380, or (301) 495-3311; www.alzheimers.org A service of the National Institute on Aging which distributes information on Alzheimer's disease, current research activities and services available to patients and families.
American Foundation for Suicide Prevention, 120 Wall St.,22nd Floor, New York, NY 10005; (212) 363-3500. Support group and other information available. Anxiety Disorders Association of America, 6000 Executive Blvd., Suite 200, Rockville, MD 20852-3801; (301) 231-9450. This organization's purpose is to promote the prevention and cure of anxiety disorders and to improve the lives of people who suffer from them. Educational and informational materials, a newsletter, and referral services are available.
Autism Society of America, 7910 Woodmont Ave., Suite 300, Bethesda, MD 20814; (301) 657-0881; (800) 328-8476; www.autism-society.org Center for Mental Health Services (CMHS), Office of Consumer, Family and Public Information, 5600 Fishers Lane, Room #13101, Rockville, MD 20857; (301) 443-2792. CMHS is a component of the Substance Abuse and Mental Health Services Administration of the U.S. Public Health Service. An informational kit is available. There also is a web site, the Knowledge Exchange Network; www.mentalhealth.org
Center for Psychiatric Rehabilitation, Boston University, 940 Commonwealth Avenue West, Boston, MA 02215; (617) 353-3549; (617) 353-7700 (TDD); www.bu.edu/cpr/ This Center publishes the Psychosocial Rehabilitation Journal. Children and Adults with Attention Deficit Disorder (CHADD), 8181 Professional Pl., Suite 201, Landover, MD. 20785; (301) 306-7070; national@chadd.org
Compassionate Friends, Inc., National Headquarters for Bereaved Parents, P.O. Box 3696, Oak Brook, IL 60521; (630) 990-0010; www.compassionatefriends.org Information available on starting a bereavement support group. COMPEER, Monroe Square, Suite B-1, 259 Monroe Avenue, Rochester, NY 14607;(716) 546-8280; www.compeer.org Matches caring, sensitive, trained volunteers with mental health consumers in a one-to-one relationship. Training materials, resources, and information about setting up a program are available.
D/ART, (Depression Awareness, Recognition and Treatment Program), 5600 Fishers Lane, Room 10-85, Rockville, MD 20857; (800) 421-4211 or (301) 443-4140; www.nimh.nih.gov It is a professional and public education program sponsored by the National Institute of Mental Health. Informational brochures, booklets and kits available. Dayton Suicide Prevention Center, P.O. Box 1393, Dayton, OH 45401-1393; (800) 320-4357 or (937) 226-0818. Information on starting a bereavement support group and a guideline manual available.
Depression After Delivery, P.O. Box 278, Belle Meade, NJ 08502; (215) 295-3994; (800) 944-4773; www.behavenet.com/dadinc Department of Justice, Office of Americans with Disabilities Act, Civil Rights Division, P.O. Box 66118, Washington, D.C. 20035; (202) 514-0301.
Depression and Related Affective Disorders Association, Johns Hopkins Hospital, Meyer 3-181, 600 North Wolfe Street, Baltimore, MD 21287-7381; (410) 955-4647. Emotions Anonymous, P.O. Box 4245, St. Paul, MN 55104-0245. Support groups and information for consumers of mental health services.(651)647-9712; www.emotionsanonymous.org
The Federation of Families for Children's Mental Health, 1021 Prince Street, Alexandria, VA 22314-2971; (703) 684-7710; www.ffcmh.org A parent-run organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families. Informational and educational materials and a newsletter are available. They also have information about, support groups and have referral information. Foundation for Depression and Manic Depression, 24 East 81st Street, Suite 2B, New York, NY 10028; (212) 772-3400.
Grow, Inc., P.O. Box 3667, Champaign, IL 61826, (217)352-6989 A group for consumers of mental health services, which has local chapters that provide information and support groups. Some groups work with people who have both mental illness and a substance abuse problem. Indianapolis Center for Congregations, 303 North Alabama Street, Suite 100, Indianapolis, IN 46240; 317-237-7799; fax 317-237-7795; e-mail info@centerforcongregations.org; www.congregationalresources.org/MentalHealth.asp The Indianapolis Center for Congregations is a resource/referral agency for churches of all faiths, offering seminars and workshops.
International Conference of War Veteran Ministers (formerly the National Conference of Viet Nam Veteran Ministers). The web site is www.vietnamveteranministers.org. Juvenile Justice Clearing House, P.O. Box 6000, Rockville, MD 20850; (800) 638-8736; www.ncjrs.org The Clearinghouse collects, synthesizes, and disseminates information on juvenile justice and delinquency prevention. It offers information on runaway, missing, and abducted children, sexual exploitation, the response of the criminal justice system to child abuse, and other topics related to child and adolescent maltreatment.
Learning Disabilities Association of America, 4156 Library Road, Pittsburgh, PA 15234; (412) 341-1515; www.ldanatl.org Lithium Information Center, Madison Institute of Medicine, 7617 Mineral Point Rd., Suite 300, Madison WI 53717; (608) 827-2470; Fax (608) 827-2479; Email: mim@miminc.org; www.miminc.org/index.html Collects and disseminates information about the biomedical uses of lithium. Two computerized systems are available which are the Lithium Library and the Lithium Index.
Matrix Research Institute/Penn Research and Training Center of Mental Illness and Work, 6008 Wayne Avenue, Philadelphia, PA 19144; (215) 438-8200; (215) 438-1506 (TDD). National Alliance for the Mentally Ill (NAMI), 2107 Wilson Blvd., 3rd. Floor, Arlington, VA 22201; (703) 524-7600. Helpline is (800) 950-6264. Web site is www.nami.org A support, education and advocacy organization of families of persons with a mental illness, those who have the illness and mental health professionals. It provides referrals and information about its local chapters which have educational and referral information and support groups. NAMI provides literature, videotapes, posters and newsletters. NEW: Nami FaithNet Suggested Reading page is at www.faithnetnami.org/hreading.htm
Multicultural Support from NAMI Free PDF Newsletters (in English)
NEW - Avanzamos! NAMI's quarterly Spanish newsletter. Order hard copies at www.nami.org/store or sign up for the electronic version at www.nami.org/subscribe To learn more or sign up for Latino , African American, or Asian American and Pacific Islander E-News, e-mail them at MACenter@nami.org or call 703-524-7600.
NARSAD - the Mental Health Research Association, 60 Cutter Mill Road, Suite 404, Great Neck, NY 10021; (516) 829-0091; www.narsad.org Previously known as the National Alliance for Research on Schizophrenia and Depression, NARSAD is a private, not-for-profit public charity 501(C)(3) organized for the purpose of raising funds for scientific research into the causes, cures, treatments and prevention of severe psychiatric brain and behavior disorders, such as schizophrenia and depression. A most informative newsletter is available. National Association of Anorexia Nervosa and Associated Disorders (ANAD), P.O. Box 7, Highland Park, IL 60035; (847) 831-3438; www.anad.org/site/anadweb/
National Coalition for the Homeless, 1012 14th St. N.W., Suite 600, Washington, D.C. 20005-3406; (202) 737-6444; nch.ari.net National Clearing House for Alcohol and Drug Information, P.O. Box 2345, Rockville, MD 20847-2345; (800) 729-6686; www.health.org A national clearing house for alcohol and drug information overseen by the Substance Abuse and Mental Health Services Administration (SAMHSA) of the United States Department of Health and Human Services. It offers brochures, videotapes, guides and surveys, many of which pertain to children and youth.
National Depressive and Manic Depressive Association (NDMDA), 730 North Franklin St., Suite 501, Chicago, IL 60610; (800) 826-3632 or (312) 642-0049; www.nichcy.org A support, education and advocacy organization for people with depression and manic depression. Information is available about referral, support groups, educational literature and a newsletter. National Eating Disorders Association, 603 Stewart Street, Suite 803, Seattle, WA 98101-1264; Ph. (206) 382-3587, Fax (206) 829-8501. Toll-Free Information & Referral Helpline (800) 931-2237. Web site: www.NationalEatingDisorders.org E-mail: info@nationaleatingdisorders.org The National Eating Disorders Association is the largest not-for-profit organization in the United States working to prevent eating disorders, eliminate body dissatisfaction, and provide treatment referrals to those suffering from anorexia, bulimia and binge eating disorder and those concerned with body image, eating and weight issues.
National Information Center for Children and Youth with Disabilities, P.O. Box 1492, Washington, D.C. 20013-1492; (800) 695-0285. The Center assists parents, educators, caregivers, and others by providing personal responses to specific questions, referrals to other organizations, publications, and technical assistance to parent and professional groups. National Institute for Mental Health (NIMH), Consumer Information Center, P.O. Box 100, Pueblo, CO 81002 and NIMH, Division of Communications, 5600 Fishers Lanes, Room 15C-105 Rockville, MD 20857; (301) 443-3783; www.nimh.nih.gov A division of the National Institutes of Health (NIH) which has available educational and informational literature, videotapes, posters and public service announcements.
National Mental Health Association, 1021 Prince Street, Alexandria, VA 22314-2971; (800) 969-6642 or (703) 684-7722; www.nmha.org Information and educational literature on mental illness, mental health and research. Written materials, videotapes, posters, pubic service announcements are available. National Mental Health Consumer's Self-Help Clearinghouse, 211 Chestnut Street, Suite 1000; Philadelphia, PA 19107; (215) 751-1810; (800) 553-4359.
National Mental Health Services Knowledge Exchange Network, P.O. Box 42490, Washington, D.C. 20015; (800) 789-2647; www.mentalhealth.org A network sponsored by a SAMHSA division, the Center for Mental Health Services (CMHS). The Network offers information about federal, state, and local mental health agencies; CMHS technical assistance centers; other clearing houses and information centers; consumer and family advocacy, mental health, and professional organizations. National Stigma Clearinghouse, 245 Eighth Avenue, #213, New York, NY,10011; (212) 255-4411; http://community.webtv.net/stigmanet
National Women's Resource Center for the Prevention of Alcohol, Tobacco, and Other Drug Abuse and Mental Illness, 515 King St., Suite 410, Alexandria, VA 22314; (800) 354-8824. The Center is sponsored by the Substance Abuse Mental Health Services Administration (SAMHSA) of the U.S. Department of Health and Human Services. It includes information relevant to pregnant women and their infants and children, and female adolescents. Services include: technical assistance to states, communities, professionals and policy makers; a Community Training Institute; National ResourceLink Conferences; and a direct, on-line computer system of information called the Prevention Research and Education Management Information System (PREMIS). Obsessive Compulsive Anonymous (OCA), P.O. Box 215, New Hyde Park, NY 11040; (516) 741-4901. Information and support groups.
Obsessive Compulsive Disorder Foundation, P.O. Box 70, Milford, CT 06460-0070; (203) 878-5669; www.ocfoundation.org Referrals, support group, educational materials, videotapes, buttons, posters and a newsletter are available. Obsessive Compulsive Information Center, Madison Institute of Madison, 7617 Mineral Point Rd., Suite 300, Madison, WI 53717; (608) 827-2470. Order forms and brochure www.healthtechsys.com/mim.html.
Panic Disorder Education Program, NIMH, 5600 Fishers Lane, Room 7-99, Rockville, MD 20857; (800) 647-2642 or (301) 443-4536. Educational materials are available which include a videotape, brochures, and pamphlets. Recovery, Inc., 802 North Dearborn St., Chicago, IL, 60610; (312) 337-5661; www.recovery-inc.com Self-help organization for consumers of mental health services. Information about support groups and a newsletter is available.
STEMSS Institute, National Headquarters, 140 E. Dekora St., Saukville, WI 53080; (414) 268-0899. Support groups and programs for people with both mental illness and substance abuse. Tardive Dyskinesia/Tardive Dystonia National Assn., 4244 University Way, N.E., P.O. box 45732, Seattle, WA 98145; (206) 522-3166.
Tourette Syndrome Association, 42-40 Bell Boulevard, Bayside, NY 11361-2820; (800) 237-0717; (718) 224-2999. WELLCOA (Wellness Councils of America), 7101 Newport Avenue, Suite 311, Omaha, NB 68152-2175; (402) 572-3590. Has available for a fee, "Downtime, A Worksite Guide to Understanding Clinical Depression," which is a package that includes a guide and videotape on recognizing and dealing with clinical depression.
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